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Medical and otherwise


We met with Dr. Tsang yesterday - he's the 'backup' oncologist because Dr. Gosewehr is out of town until Friday.
There was yet more bad news. The cancer in Penny's liver is interfering with good function of the liver, and that includes protein synthesis for bodily repairs. Putting her on any kind of anabolic drug would not help her. This means they can't try to get her stronger that way.

They can, and will, use metabolic blockers (estrogen driven cancer, so an estrogen blocker would help a lot) but the stronger ones actually count as chemotherapy and have the same negative side effects. We'll know more later about what can be done with that to help her.

The cancer is spread far wider through her abdomen than we had been informed. The majority of the uncomfortable swelling in her abdomen is due to the masses, not to fluid or anything else weird.

The inability to eat was due to massive erosion in her esophagus - the pressure, plus being unable to sit upright comfortably, caused large amounts of acid to wash back into the esophagus, and resulted in some truly nasty stuff. They're working to repair that with acid reducing drugs, a sort of 'coating' stuff she drinks, and so forth. However, it's still very painful and very hard to eat for her.

We're meeting with Hospice people today to get things moving towards how to make things work better for her at home.
Big on my list is a lift system that can attach to a wall perhaps - so she can be moved from the bed to her chair or to the bedside commode, so she has some dignity and comfort with bowel movements, bathing, beintg able to get her hair washed, etc.


In news of the weird, I got a call at 7am which I missed, and a call-back at 8am, from some headhunter calling about an urgently needed object-oriented-programming person for a job in New York. I had to decline to be interviewed, as New York is rather far away and Penny can't really handle me being away right now. Honestly, when I put my resume up on Dice, I did say "Pacific Northwest only".

Comments

( 3 comments — Leave a comment )
invisiblewolf
Jan. 10th, 2006 05:16 am (UTC)
I'm very sorry to hear about this -- it sounds like a terrible ordeal. Having only just met you (more formally than having read your posts to a.f.d-i ten years ago), I don't know what to say other than I hope that things get better for you two soon.

I will keep her in my thoughts and prayers.

-Spiritwolf.
foomf
Jan. 10th, 2006 08:20 am (UTC)
Thank you. This has been a very painful time, but we're doing our best to 'stay grounded'...

We've chosen Hospice as opposed to Palliative Treatment, because Hospice will help us get everything set up so she can be free of pain. We can also still attempt treatment that might improve her situation, though Hospice may not pay for that.

And they're not going to charge us anything for their services. I strongly urge anyone who has a spare half-million that they must give to charity, to contribute it to Hospice.
liralen
Jan. 10th, 2006 08:13 pm (UTC)
I'm so glad that they're meeting your real needs. I'll definitely keep them in mind for our next set of donations, not nearly half a mil, but hey, it all helps.
( 3 comments — Leave a comment )